Libby Hoy

As the mother of three sons living with mitochondrial disease, Libby has 20 years of experience navigating the healthcare system. Libby began volunteering as a Parent Mentor in 1995 and has been working to improve health systems and empower patients and families to be active partners in care ever since. In her role as the first Family Advocate at Miller Children’s Hospital, she developed the Parent Advisory Board and created the structure for the long term integration of the Patient & Family voice within the organization. Libby has presented at multiple national and international conferences on subjects related to Patient & Family Centered Care practice. As a consultant, Libby strives to share the evidence, practices, and methods that support PFCC culture in health care organizations. In 2010, Libby founded PFCCpartners to create a community of patients, families, providers, and health care organizations committed to the shared learning of Patient & Family Centered Care practice. PFCCpartners also established the PFAnetwork, inclusive of more than 150 Patient Family Advisors working in healthcare settings across the country to partner for improvement in the quality, safety, experience, and delivery of healthcare. Libby has served as an Advisor to Patient Centered Outcomes Research Institute (PCORI), Partnership for Patients, Institute of Medicine (IOM), National Quality Forum (NQF) and as Faculty for the Institute for Healthcare Improvement (IHI). In these and all efforts, Libby strives to build the infrastructure and capacity for healthcare organizations to engage all patients and families, from the bedside to the boardroom. Libby lives and works in Long Beach, California.